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But then she began feeling pain in her wrists. That was in 2002, and the little girl who loved to do cartwheels and shoot hoops with her dad was steadily overcome by aches in her joints, said her mother, Maria Powery. “It took a long time for them to figure it out,” Maria said, adding that once doctors determined Christiana had juvenile rheumatoid arthritis, they gave her medicines so she could continue to play sports and go to school in Almaden Valley. But around her 10th birthday, Christiana became weak again. Once again, she couldn’t play. She had difficulty even hanging up her towel on the rack.
“The arthritis was in remission, but she got another autoimmune disease,” her mother said, It took seven months to diagnose Christiana’s juvenile dermatomyositis (JDMS), an autoimmune disease that breaks down the blood cells in all muscle systems, “Eventually, they found her blood cell levels were at a dangerous point,” Maria said, “She loved to dance and be goofy, … She went from being blue swarovski crystal ballerina slippers ballet dance shoes pendant necklace christmas gift new an athlete to being in a wheelchair.”, The 10-year-old girl wasn’t responding to treatments of steroids and medications that the doctors believed would help..
Because JDMS is rare, affecting roughly three out of 1 million children, Christiana’s team of doctors scrambled to figure out a course for treatment. They pored over research articles and called physicians across the country who had treated the autoimmune disease before. The fifth-grader meanwhile was also diagnosed with thrombotic thrombocytopenic purpura, a rare blood condition characterized by formation of small blood clots, causing a low platelet count. She was hospitalized at Stanford’s Lucille Packard Children’s Hospital for three months before the two diseases became too much for her body to handle. Christiana died in December 2005.
Maria and her husband Dwight jumped into action following Christiana’s death to begin raising awareness about juvenile rheumatoid arthritis and juvenile dermatomyositis, They organized a community basketball game to raise money for research and to let people know about their daughter and her rare autoimmune disease, A year after Christiana’s death, Dwight joined the California Coast Classic, a 525-mile ride from San Francisco to Los Angeles that raises money for the Arthritis Foundation, Two of Christiana’s doctors, one of whom barely knew how to blue swarovski crystal ballerina slippers ballet dance shoes pendant necklace christmas gift new ride, had planned to do the trip and encouraged the girl’s father to go, too..
Maria joined her husband two years later. This will be the first year that she, Dwight and their two older daughters will all ride together. Christiana always had a knack for bringing people together, her parents said. The nurses who treated her still call to check in with the family. Her friends from elementary school, now all about 20 years old, come by for visits. “She made her friends feel like the best friends but yet she had so many,” Dwight said. “She had an uplifting spirit. She had a bright spirit.”.
The parents hope to carry on Christiana’s legacy as they take the group ride up the coast, Donning bicycle jerseys with SpongeBob on them, the team honoring the little girl will have 21 blue swarovski crystal ballerina slippers ballet dance shoes pendant necklace christmas gift new riders this year, “We’re looking forward to riding with our girls,” Maria said, “This is a special year because it’s been 10 years since she passed away.”, The team is called “Also Touch.” Those were the last words Christiana wrote in the journal she kept about her treatments, health and faith, In the sentence before her words trailed off, she asks Jesus to heal the baby in the hospital room next to her..
Since 2007 the team has raised $250,000. The goal for this year is an additional $70,000. A total of 300 riders take part in the California Coast Classic, which will leave from San Francisco on Sept. 26. This year is the 15th anniversary. Many of the riders, including the Powerys, camp at night during the eight-day journey. “You get to know people and build camaraderie,” Dwight said. “At the campsite you get to hear their stories. Some are riding for family. Some are riding for themselves.”.
A person is honored each day of the ride, In 2014, Christiana was the first child to be held as an honoree, “We just wanted to do something in her memory,” Maria said, And the more that people hear about Christiana and her story, Maria said, the more awareness is raised about juvenile dermatomyositis and juvenile rheumatoid arthritis, “It was frustrating because her disease is so rare,” Maria said, “It was just so blue swarovski crystal ballerina slippers ballet dance shoes pendant necklace christmas gift new hard, and part of this is getting rheumatologists to talk and create a database.”..
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